We came to know Carter and his family through Jessica, his aunt, who lives in the Des Moines area where our office is located. Carter lives in Michigan. He is 6 years old and was diagnosed with a mitochondrial disease when he was 2 1/2 years old, after muscle biopsies, spinal taps, numerous labs and many other tests. Carter’s family knew something wasn’t right before his first birthday. He couldn’t hold his head up, couldn’t sit without support, and had trouble holding food down. When they transferred his care out-of-state they finally received answers about his condition.
(Savannah’s Hope helped Carter’s family with meals and the hotel stay they needed to see a mitochondrial geneticist, epilepsy doctor and gastrointestinal doctor. His parents believe that this trip wouldn’t have been possible without our help.)