R E S O U R C E S
Finding help is hard, especially when you're not sure what is going on or what is going to happen to a loved one.
Here we have some links where you can learn more about rare diseases, and we have a list of programs we offer to provide assistance. If you just need a shoulder to cry on or nice long hug, we are more than happy to offer you emotional support as well! Please contact us if you have any questions here.